A parent of a child with Treacher Collins Syndrome coincidentally posted her own blog update about feeding but has gone into far more detail than I have on what it actually involves, you can read it here:
http://storyofkobe.blogspot.co.uk/2012/11/a-day-in-life-of-kobe-and-his-feeding.html?spref=fb
This is the first time I've heard someone talk about using blended food straight in as I thought you had to use specially designed formulas but I guess you learn something new every day.
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