Welcome

Hello and welcome to my blog, it has been something that I've wanted to do for a while now and since I now have the time I've decided to jump in. You may be wondering what the title is about, this statistic shows the number of people affected by Treacher Collins Syndrome. I myself am 1 in 50,000. This blog is my way of sharing information about TCS and my own experiences so people can better understand it.

My idea for starting this blog came when looking on the internet, there is a fair amount of information available but any of the personal sites or blogs I found have long been left without being updated. Its also due to the awareness of TCS that has been raised by Jono Lancaster and how I wanted to show that not all people with TCS have had such issues as him.

I will try to be show a balanced view, both positive and negative with some of my own interests thrown in.

I hope you enjoy my blog.

Edit:
I've noticed that some places say 1 in 10,000 and others say 1 in 50,000, its a little bit confusing, I will try and  confirm.